TABLE 4

Caregiver burden review: summary of included studies

First author, year [ref.]Study designCountryAffected domain
Bruscino, 2019 [98]SurveyUSAAnxiety, despair
Wienke, 2014 [99]Registry-based studyUSADelayed diagnosis, genetic discrimination, travel time
Williams, 2013 [100]SurveyUSAGenetic discrimination, decisional burden to test
Mahadeva, 2013 [102]SurveyEnglandFinance, routine, delayed diagnosis
Sveger, 1999 [101]Prospective studySwedenMental anxiety