Caregiver burden review: summary of included studies
| First author, year [ref.] | Study design | Country | Affected domain |
| Bruscino, 2019 [98] | Survey | USA | Anxiety, despair |
| Wienke, 2014 [99] | Registry-based study | USA | Delayed diagnosis, genetic discrimination, travel time |
| Williams, 2013 [100] | Survey | USA | Genetic discrimination, decisional burden to test |
| Mahadeva, 2013 [102] | Survey | England | Finance, routine, delayed diagnosis |
| Sveger, 1999 [101] | Prospective study | Sweden | Mental anxiety |