TABLE 1

Overview of data collected in pulmonary hypertension (PH) registries

NIH 1987French 2006Swedish 2007PHC 2007Scottish 2007REVEAL 2010ASPIRE 2012UK 2012Spanish 2012COMPERA 2012
Incidence/prevalence-xx-xx-xx-
PH (sub)groups-x--xxx-x-
Demographicsxxxx-xxxxx
Symptomsxx---x-xx-
Diagnostic delayxx---x-xx-
PFTxxxx-xxx--
Haemodynamic parametersxxxx-xxxxx
Treatment practices-xxx-xxx-x
Outcome and predictorsxxxx-xxxxx
Oral anticoagulation---x-x---x
Risk stratification-x---x-xxx

NIH: National Institutes of Health; PHC: Pulmonary Hypertension Connection; REVEAL: Registry to Evaluate Early and Long-Term Pulmonary Arterial Hypertension; ASPIRE: Assessing the Spectrum of Pulmonary Hypertension Identified at a Referral Centre; COMPERA: Comparative, Prospective Registry of Newly Initiated Therapies for Pulmonary Hypertension; PFT: pulmonary function test.