TABLE 1

Summary of health-related quality of life scales used in pulmonary arterial hypertension

Scale	Domains	Items n	Recall period
Generic
SF-36 [35]	8 domains: physical functioning, role physical, bodily pain, general health, vitality, social functioning, role emotional, mental health	36	Now to past 4 weeks
EQ-5D [36]	5 domains: mobility, self-care, usual activities, pain/discomfort, anxiety/depression	5	Today
NHP [37]	6 domains: physical mobility, pain, social isolation, emotional reactions, energy level, sleep	38	At the moment
Disease-specific
CAMPHOR [38]	3 domains: overall symptoms (energy, breathlessness, mood), functioning, quality of life	65	Today
MLHFQ [39]	2 domains: physical, emotional	21	4 weeks
LPH^# [40]	2 domains: physical, emotional	21	1 week
CHQ [41]	4 domains: dyspnoea, fatigue, emotional function, mastery	20	2 weeks
emPHasis-10 [42]	Unidimensional	10	At the moment

SF-36: Medical Outcomes Study 36-item short form; EQ-5D: EuroQol Group 5-Dimension Self-Report Questionnaire; NHP: Nottingham Health Profile; CAMPHOR: Cambridge Pulmonary Hypertension Outcome Review; MLHFQ: Minnesota Living with Heart Failure Questionnaire; LPH: Living with Pulmonary Hypertension questionnaire; CHQ: Chronic Heart Failure Questionnaire. ^#: adapted from MLHFQ. Information from [25, 33].