Summary of health-related quality of life scales used in pulmonary arterial hypertension

ScaleDomainsItems nRecall period
 SF-36 [35]8 domains: physical functioning, role physical, bodily pain, general health, vitality, social functioning, role emotional, mental health36Now to past 4 weeks
 EQ-5D [36]5 domains: mobility, self-care, usual activities, pain/discomfort, anxiety/depression5Today
 NHP [37]6 domains: physical mobility, pain, social isolation, emotional reactions, energy level, sleep38At the moment
 CAMPHOR [38]3 domains: overall symptoms (energy, breathlessness, mood), functioning, quality of life65Today
 MLHFQ [39]2 domains: physical, emotional214 weeks
 LPH# [40]2 domains: physical, emotional211 week
 CHQ [41]4 domains: dyspnoea, fatigue, emotional function, mastery202 weeks
 emPHasis-10 [42]Unidimensional10At the moment
  • SF-36: Medical Outcomes Study 36-item short form; EQ-5D: EuroQol Group 5-Dimension Self-Report Questionnaire; NHP: Nottingham Health Profile; CAMPHOR: Cambridge Pulmonary Hypertension Outcome Review; MLHFQ: Minnesota Living with Heart Failure Questionnaire; LPH: Living with Pulmonary Hypertension questionnaire; CHQ: Chronic Heart Failure Questionnaire. #: adapted from MLHFQ. Information from [25, 33].