PT  - JOURNAL ARTICLE
AU  - Peat, George
AU  - Delaney, Sally-Ann
AU  - Gibson, Faith
AU  - Fraser, Lorna K.
AU  - Brierley, Joe
TI  - Shared decision-making experiences in child long-term ventilation: a systematic review
AID  - 10.1183/16000617.0098-2023
DP  - 2023 Sep 30
TA  - European Respiratory Review
PG  - 230098
VI  - 32
IP  - 169
4099  - https://publications.ersnet.org//content/32/169/230098.short
4100  - https://publications.ersnet.org//content/32/169/230098.full
SO  - EUROPEAN RESPIRATORY REVIEW2023 Sep 30; 32
AB  - Introduction: Recent decades have seen an increase in children receiving long-term ventilation. To ensure that long-term ventilation decisions incorporate the perspectives of stakeholders, it is vital that empirical evidence is gathered to substantiate frameworks and guidance on shared decision-making for long-term ventilation. This systematic review and qualitative evidence synthesis aimed to clarify what shared decision-making constitutes in relation to long-term ventilation initiation for children and young people (<21 years).Methods: A systematic review of qualitative research was undertaken. Searches were conducted in MEDLINE, Embase, CINAHL, PsycINFO and Web of Science.Results: Findings from 13 studies were included representative of 363 caregivers and 143 healthcare professional experiences. Components that support shared decision-making included acknowledging the unique positionality of caregivers and ensuring caregivers were informed about the implications of long-term ventilation. Beneficial qualities of engagement between stakeholders included honest, clear and timely dialogue using lay, tactful and sensitive language.Conclusion: Our findings clarify components and approaches supportive of shared decision-making in discussions about long-term ventilation. This review therefore provides a valuable resource to implement shared decision-making practices in the context of long-term ventilation decisions for children and young people.Implementing shared decision-making practice in child long-term ventilation is challenging. Ensuring caregivers feel informed, acknowledging their unique position and using honest, clear and timely dialogue can support shared decision-making. https://bit.ly/3r9EpeP