PT  - JOURNAL ARTICLE
AU  - Jytte Graarup
AU  - Pisana Ferrari
AU  - Luke S. Howard
TI  - Patient engagement and self-management in pulmonary arterial hypertension
AID  - 10.1183/16000617.0078-2016
DP  - 2016 Dec 01
TA  - European Respiratory Review
PG  - 399--407
VI  - 25
IP  - 142
4099  - http://err.ersjournals.com/content/25/142/399.short
4100  - http://err.ersjournals.com/content/25/142/399.full
SO  - EUROPEAN RESPIRATORY REVIEW2016 Dec 01; 25
AB  - Improved care in pulmonary arterial hypertension has led to increased longevity for patients, with a paralleled evolution in the nature of their needs. There is more focus on the impact of the disease on their day-to-day activities and quality of life, and a holistic approach is coming to the front of pulmonary arterial hypertension management, which places the patient at the centre of their own healthcare. Patients are thus becoming more proactive, involved and engaged in their self-care, and this engagement is an important factor if patient outcomes are to improve. In addition, involvement of the patient may improve their ability to cope with pulmonary arterial hypertension, as well as help them to become effective in the self-management of their disease. Successful patient engagement can be achieved through effective education and the delivery and communication of timely, high-quality information. A multidisciplinary approach involving healthcare professionals, carers, patient associations and expert patient programmes can also encourage patients to engage. Strategies that promote patient engagement can help to achieve the best possible care and support for the patient and also benefit healthcare providers.The evolving needs of PAH requires patients to participate in self-management of their disease http://ow.ly/uT79305pyyj