TY - JOUR T1 - Patient engagement and self-management in pulmonary arterial hypertension JF - European Respiratory Review JO - EUROPEAN RESPIRATORY REVIEW SP - 399 LP - 407 DO - 10.1183/16000617.0078-2016 VL - 25 IS - 142 AU - Jytte Graarup AU - Pisana Ferrari AU - Luke S. Howard Y1 - 2016/12/01 UR - http://err.ersjournals.com/content/25/142/399.abstract N2 - Improved care in pulmonary arterial hypertension has led to increased longevity for patients, with a paralleled evolution in the nature of their needs. There is more focus on the impact of the disease on their day-to-day activities and quality of life, and a holistic approach is coming to the front of pulmonary arterial hypertension management, which places the patient at the centre of their own healthcare. Patients are thus becoming more proactive, involved and engaged in their self-care, and this engagement is an important factor if patient outcomes are to improve. In addition, involvement of the patient may improve their ability to cope with pulmonary arterial hypertension, as well as help them to become effective in the self-management of their disease. Successful patient engagement can be achieved through effective education and the delivery and communication of timely, high-quality information. A multidisciplinary approach involving healthcare professionals, carers, patient associations and expert patient programmes can also encourage patients to engage. Strategies that promote patient engagement can help to achieve the best possible care and support for the patient and also benefit healthcare providers.The evolving needs of PAH requires patients to participate in self-management of their disease http://ow.ly/uT79305pyyj ER -