RT Journal Article SR Electronic T1 Informal caregivers of patients with COPD: Home Sweet Home? JF European Respiratory Review JO EUROPEAN RESPIRATORY REVIEW FD European Respiratory Society SP 498 OP 504 DO 10.1183/16000617.00010114 VO 24 IS 137 A1 Nakken, Nienke A1 Janssen, Daisy J.A. A1 van den Bogaart, Esther H.A. A1 Wouters, Emiel F.M. A1 Franssen, Frits M.E. A1 Vercoulen, Jan H. A1 Spruit, Martijn A. YR 2015 UL https://publications.ersnet.org//content/24/137/498.abstract AB The burden of chronic obstructive pulmonary disease (COPD) on society is increasing. Healthcare systems should support patients with COPD in achieving an optimal quality of life, while limiting the costs of care. As a consequence, a shift from hospital care to home care seems inevitable. Therefore, patients will have to rely to a greater extent on informal caregivers. Patients with COPD as well as their informal caregivers are confronted with multiple limitations in activities of daily living. The presence of an informal caregiver is important to provide practical help and emotional support. However, caregivers can be overprotective, which can make patients more dependent. Informal caregiving may lead to symptoms of anxiety, depression, social isolation and a changed relationship with the patient. The caregivers' subjective burden is a major determinant of the impact of caregiving. Therefore, the caregiver's perception of the patient's health is an important factor. This article reviews the current knowledge about these informal caregivers of patients with COPD, the impact of COPD on their lives and their perception of the patient's health status.Informal caregivers play important roles: their needs should be part of research and clinical care for COPD patients http://ow.ly/PSl7F