Figures
- FIGURE 1
Preferred Reporting Items for Systematic Reviews and Meta-Analyses flowchart showing the inclusion of 17 articles (13 studies) from 2347 identified.
- FIGURE 2
Thematic map.
Tables
- TABLE 1
Relationship between codes, descriptive themes and analytical themes
Analytical themes Descriptive themes Codes Multiple voices; managing caregiver and healthcare professional roles in decision-making Value of multidisciplinary teams Variation in roles in decision-making Effective coordination Palliative care involvement Value of nursing staff Balancing caregiver autonomy with clinical paternalism Effective coordination Joint decision All voices heard Components facilitative of shared decision-making Types of information caregivers would have valued Engagement with others with “It's that everyday living that wasn't explained” Presented with all the facts Home nursing similar lived experiences Helpful qualities of clinician/ Long-term ventilation as lived Peer support and friendship caregiver interaction Patience, honesty and understanding Using lay language and assessing understanding Continuity of clinician and dialogue Caregiver positionality in the decision-making process Primitive drives and faith Intense emotions and their impact on information processing Getting home Preserving life Religion and spirituality Weight of the decision Shock and feeling overwhelmed Grief Loss of hope Making sense of information Is this the right thing to do? Best interests of the child Guilt Impact on family “Can I do this?”
Supplementary Material
Please note: supplementary material is not edited by the Editorial Office, and is uploaded as it has been supplied by the author.
Supplementary material ERR-0098-2023.SUPPLEMENT
Vol 32 Issue 169
Table of Contents
Shared decision-making experiences in child long-term ventilation: a systematic review
