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The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review

Joanna Y.T. Lee, Gabriella Tikellis, Tamera J. Corte, Nicole S. Goh, Gregory J. Keir, Lissa Spencer, Debra Sandford, Yet H. Khor, Ian Glaspole, John Price, Alison J. Hey-Cunningham, Jamie Maloney, Alan K.Y. Teoh, Alice L. Watson, Anne E. Holland
European Respiratory Review 2020 29: 190125; DOI: 10.1183/16000617.0125-2019
Joanna Y.T. Lee
1Physiotherapy, La Trobe University, Melbourne, Australia
2Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Australia
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
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  • ORCID record for Joanna Y.T. Lee
Gabriella Tikellis
1Physiotherapy, La Trobe University, Melbourne, Australia
2Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Australia
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
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Tamera J. Corte
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
4The University of Sydney, Sydney, Australia
5Respiratory Medicine, Royal Prince Alfred Hospital, Camperdown, Australia
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Nicole S. Goh
6Austin Health, Heidelberg, Australia
7Institute for Breathing and Sleep, Melbourne, Australia
8Alfred Health, Melbourne, Australia
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Gregory J. Keir
9Princess Alexandra Hospital, Woolloongabba, Australia
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Lissa Spencer
4The University of Sydney, Sydney, Australia
10Royal Prince Alfred Hospital, Camperdown, Australia
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Debra Sandford
11Royal Adelaide Hospital, Adelaide, Australia
12The University of Adelaide, Adelaide, Australia
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Yet H. Khor
6Austin Health, Heidelberg, Australia
7Institute for Breathing and Sleep, Melbourne, Australia
8Alfred Health, Melbourne, Australia
13University of Melbourne, Melbourne, Australia
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  • ORCID record for Yet H. Khor
Ian Glaspole
2Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Australia
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
8Alfred Health, Melbourne, Australia
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John Price
14Institute for Respiratory Health, Nedlands, Australia
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Alison J. Hey-Cunningham
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
4The University of Sydney, Sydney, Australia
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Jamie Maloney
15Lung Foundation Australia, Brisbane, Australia
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Alan K.Y. Teoh
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
4The University of Sydney, Sydney, Australia
5Respiratory Medicine, Royal Prince Alfred Hospital, Camperdown, Australia
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Alice L. Watson
1Physiotherapy, La Trobe University, Melbourne, Australia
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Anne E. Holland
1Physiotherapy, La Trobe University, Melbourne, Australia
2Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Australia
3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
7Institute for Breathing and Sleep, Melbourne, Australia
8Alfred Health, Melbourne, Australia
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  • For correspondence: a.holland@alfred.org.au
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Article Information

vol. 29 no. 156
DOI 
https://doi.org/10.1183/16000617.0125-2019
PubMed 
32350085

Published By 
European Respiratory Society
Print ISSN 
0905-9180
Online ISSN 
1600-0617
History 
  • Received September 24, 2019
  • Accepted January 3, 2020
  • Published online April 29, 2020.

Copyright & Usage 
Copyright ©ERS 2020. This article is open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.

Author Information

  1. Joanna Y.T. Lee1,2,3,
  2. Gabriella Tikellis1,2,3,
  3. Tamera J. Corte3,4,5,
  4. Nicole S. Goh6,7,8,
  5. Gregory J. Keir9,
  6. Lissa Spencer4,10,
  7. Debra Sandford11,12,
  8. Yet H. Khor6,7,8,13,
  9. Ian Glaspole2,3,8,
  10. John Price14,
  11. Alison J. Hey-Cunningham3,4,
  12. Jamie Maloney15,
  13. Alan K.Y. Teoh3,4,5,
  14. Alice L. Watson1 and
  15. Anne E. Holland1,2,3,7,8⇑
  1. 1Physiotherapy, La Trobe University, Melbourne, Australia
  2. 2Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, Australia
  3. 3NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia
  4. 4The University of Sydney, Sydney, Australia
  5. 5Respiratory Medicine, Royal Prince Alfred Hospital, Camperdown, Australia
  6. 6Austin Health, Heidelberg, Australia
  7. 7Institute for Breathing and Sleep, Melbourne, Australia
  8. 8Alfred Health, Melbourne, Australia
  9. 9Princess Alexandra Hospital, Woolloongabba, Australia
  10. 10Royal Prince Alfred Hospital, Camperdown, Australia
  11. 11Royal Adelaide Hospital, Adelaide, Australia
  12. 12The University of Adelaide, Adelaide, Australia
  13. 13University of Melbourne, Melbourne, Australia
  14. 14Institute for Respiratory Health, Nedlands, Australia
  15. 15Lung Foundation Australia, Brisbane, Australia
  1. Anne E. Holland, Physiotherapy Dept, Alfred Hospital, Commercial Rd, Melbourne, 3004 Australia. E-mail: a.holland{at}alfred.org.au
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Funding

  • National Health and Medical Research Council Centre of Research Excellence in Pulmonary Fibrosis

    GNT1116371

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Vol 29 Issue 156 Table of Contents
European Respiratory Review: 29 (156)
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The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review
Joanna Y.T. Lee, Gabriella Tikellis, Tamera J. Corte, Nicole S. Goh, Gregory J. Keir, Lissa Spencer, Debra Sandford, Yet H. Khor, Ian Glaspole, John Price, Alison J. Hey-Cunningham, Jamie Maloney, Alan K.Y. Teoh, Alice L. Watson, Anne E. Holland
European Respiratory Review Jun 2020, 29 (156) 190125; DOI: 10.1183/16000617.0125-2019

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The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review
Joanna Y.T. Lee, Gabriella Tikellis, Tamera J. Corte, Nicole S. Goh, Gregory J. Keir, Lissa Spencer, Debra Sandford, Yet H. Khor, Ian Glaspole, John Price, Alison J. Hey-Cunningham, Jamie Maloney, Alan K.Y. Teoh, Alice L. Watson, Anne E. Holland
European Respiratory Review Jun 2020, 29 (156) 190125; DOI: 10.1183/16000617.0125-2019
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