Figures
- Figure 1.
Impact of pulmonary arterial hypertension on work and employment for patients and carers. #: participants were not asked for net or gross income so results assumed to be after tax.
- Figure 2.
Frequency of emotions experienced by a) pulmonary arterial hypertension (PAH) patients and b) their carers.
- Figure 3.
The main information needs for 317 patients with pulmonary arterial hypertension (PAH).
Tables
- Table 1. Demographic characteristics of the respondents
Patients Carers Subjects n 326 129 Mean age years 52 52 Females % 74 56 Country France 70 (21) 29 (22) Germany 97 (30) 11 (9) Italy 81 (25) 50 (39) Spain 45 (14) 31 (24) UK 33 (10) 8 (6) Type of PAH Idiopathic PAH 160 (49) 70 (54) Family history of PAH 16 (5) 5 (4) PAH associated with CTD 42 (13) 13 (10) PAH associated with CHD 39 (12) 18 (14) PAH associated with HIV 7 (2) PAH associated with another disease 42 (13) 15 (12) Not sure 20 (6) 8 (6) WHO/NYHA functional class I 16 (5) 4 (3) II 163 (50) 40 (31) III 111 (34) 55 (43) IV 36 (11) 30 (23) Data are presented as n (%), unless otherwise stated. PAH: pulmonary arterial hypertension; CTD: connective tissue disease; CHD: congenital heart disease; WHO: World Health Organization; NYHA: New York Heart Association.
Supplementary material
Please note: supplementary material is not edited by the Editorial Office, and is uploaded as it has been supplied by the author.
Files in this Data Supplement:
- Supplementary material -
Patient questionnaire
Carer questionnaire
- Supplementary material -
Disclosures
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