Registry | [Ref.] | Time period | Age years | Female | 1-year survival |
US NIH registry | [17, 20] | 1981–1988 | 36±15 | 63 | 68 |
French registry# | [4, 19, 23] | 2002–2003 | 52±15 | 62 | 89 |
US REVEAL | [3, 9, 12] | 2006–2009 | 50±15 | 80 | 88 |
PH registry of the UK and Ireland#,¶ | [6] | 2001–2009 | 50±17 | 70 | 93 |
COMPERA+ | [13] | 2007–2011 | 65±15 | 60 | 92 |
New Chinese registry | [26] | 2008–2011 | 38±13 | 70 | 92 |
Czech registry | [7] | 2000–2007 | 52±17 | 65 | 89¶ |
Data are presented as mean±sd or %, unless otherwise stated. NIH: National Institutes of Health; REVEAL: Registry to Evaluate Early and Long-term PAH Disease Management; PH: pulmonary hypertension; COMPERA: Comparative, Prospective Registry of Newly Initiated Therapies for Pulmonary Hypertension. #: included idiopathic pulmonary arterial hypertension (PAH), familial/heritable PAH and anorexigen-associated PAH; ¶: incident population; +: countries involved included Austria, Belgium, Germany, Italy, the Netherlands, Switzerland and the UK.